Pulmonary Hypertension (PH) is a very rare disease that disproportionately impacts babies born premature or with congenital heart defects (like Megan). PH causes the veins in the lungs to narrow increasing blood pressure and stressing the heart. Only recently have new drug therapies been introduced that significantly improve survival rates for children with PH - in fact Megan is one of the first infants with her heart condition to have been treated with her particular mix of therapies. UCSF Benioff Children’s Hospital San Francisco is one of the world's leading centers for the treatment of pediatric PH and is at the forefront of developing new treatments, among them is an effort to provide more holistic care outside of the hospital - including providing these special children with opportunities they would normally not enjoy because of their illness.
The Pulmonary Hypertension Clinic at UCSF Benioff Children’s Hospital San Francisco provides consultation, diagnosis and treatment of pulmonary hypertension (PH) in children. The Team consists of experts in neonatology, pediatric critical care and pediatric cardiology. The clinic is dedicated to providing the highest-quality of care that incorporates state of the art technology and a compassionate, patient-centered approach.
The UCSF Pediatric Pulmonary Hypertension Program is one of 8 founding members of PPHNet—a comprehensive North American network of centers dedicated to children with pulmonary vascular disease.
As one of just two pediatric centers on the West Coast to be accredited as Pulmonary Hypertension Comprehensive Center of Care by the Pulmonary Hypertension Association, the clinic is the only accredited multidisciplinary pediatric- focused PH program on the West Coast. It currently serves 152 active patients.